Available Data

Enrollment Survey

The enrollment survey is sent to all twins in order to enroll in the Registry.

Health & Wellbeing Questionnaire

The health & wellbeing questionnaire is sent every 2 years after the initial enrollment survey to collect follow-up data from our enrolled members.

Questionnaire Assessment Domains

TopicsEnrollment SurveyHealth & Wellbeing
Sociodemographicsxx
Zygosityx
Height and Weightxx
Physical Activityxx
Sleepxx
Eating habitsxx
Allergiesxx
Health Functioningxx
Alcohol Usexx
Tobacco Usexx
Pain Conditionsxx
Fatiguexx
Head Injuryxx
Depressionxx
Anxietyxx
Posttraumatic Stressxx
Resilient Copingx
Perceived Stressxx
Five-factor Personality Traitsx
Geocoded Data for Environmental Exposuresxx